It’s a number game!
So good news…. you have lost 87 lbs! Great Job!
Good news….. you are the healthiest PKD patient we have seen!
Good news…. there is no reason you should not be put on the “List”…..However *********
Bad News…… your kidney function is at 22%….. in order to get on the list we need your function to be at 20% (FYI…Regular kidney function is 100% or close to it)
WAIT! I remembered that the last regular kidney Dr. visit just last week …. it was at 20%! (Yes… we are cheering for a lower kidney function… sad really)
I tell the coordinator that his regular kidney dr. should have the results…. it is at 20%…… please check….
The team decides to check on this before making a decision….
Good News! The results are in 20% kidney function! YES! YES! YES!
Then, after waiting 4 days…. the team votes on his case…. Timothy you are sick enough to be placed on the National Kidney Transplant List. November 2013 – He is placed on the “list”
PKD…. you stink – but he is one step closer to fixing you!
Tears, happiness, sadness, and fear…. all wrapped up
Emotions flying …. not sure how to feel.
New Goal….. What’s next…. we have NO IDEA! Just Happy for now!